gradys all stars

We wanted to let everyone know that Drew has been invited to be screened for the Genotype-Phenotype Correlations of Late Infantile Neuronal Ceroid Lipofuscinosis (2).

This is exciting news for us. Drew will travel to New York Presbyterian Hospital - Weill Medical College of Cornell University at the end of June. While there he will undergo a series of test and evaluations to see if he is a good candidate for the study. They are selecting 32 children with LINCL to participate. Half of the children will receive the Gene therapy and half will be the control group.

Trent has not been invited as of yet so please continue to pray that he will also be invited for the screening process.

We will keep everyone updated!