gradys all stars

People are giving me a hard time about not having a post yet so Tom this is for you!

Drew's weight has been dropping lately so we have decided to place a g-tube. He will have the surgery on October 6th so wish us luck. When he had his VNS implanted last August he had a hard waking up. I think it was due to all the pain killers they gave him when he first came out of surgery. He was crying and I thought he might be in pain so we pumped him full of meds. Trent is still showing no signs of Batten Disease. His speech is improving daily thanks to Brain and Kristi his speech therapists.

Drew also stared school this week. He rides the bus! When he was still talking he would demand that we drive through the bus parking lot to count the buses. I would tell him that I was going to cry when he started taking the bus. He thought that was so funny that he would always say "Mama cry" when asked what I was going to do his first day of big boy school. I am proud to say that I did not cry!!!! I have come a long way in this journey so far. Instead of being sad on his first day I was thankful that he was getting the experience. It is truly a blessing that he is still well enough to go to school. Our neighbors Nolan and Chloe (Drew's girlfriend) along with Trent waved to Drew as he got on the bus and they were there to greet him when he got home. Drew is loving school! Trent on the other hand misses his big brother when he is gone.

A few articles ran in our local papers this week and the response is great.  There are so many good people out there that want to help.  The articles are under the Links section of the site.  Next week there will be more so check back.

We will be selling tickets for the Pasta Dinner on Saturday September 5th from 9-2 at the Panera at South Park Shops so please stop by and see us.